I didn't get the news I hoped for yesterday. There are some new questionable spots lighting up on my PET Scan. We are working on digesting the news and formulating a plan. Thank you for continuing to keep good thoughts for me.
Weren't there some spots after your last PET scan too? Maybe they are nothing? Keep positive even though it is so damned hard to. Or maybe some of last week's flu/virus is still lingering inside of you? Good thoughts coming your way and keep us all posted. karin
I've been reading your blog for a while now. Stumbled across it when my friend got diagnosed with Cancer.
I've never commented before but I just wanted to say that you will beat this. I know it!! I have a feeling in my gut that you will be live a long long life...
My thoughts are with you and if I could I would give you a physical hug, but instead sending lots of virtual ones! XXX
Sending MANY positive thoughts and good wishes for all of this to settle into something manageable! You have an army of support behind you. Take care and know that so many care and are with you in positive spirit!!!!!!!
Hi Karin. I have been reading your blog since you and I were both diagnosed with Hodgkin's in 2009. I also have lupus and sjogren's (the autoimmune disease that Venus Williams has). Ever since I completed 6 months of ABVD in January 2010, my PET scans light up like a Christmas tree in different places all over my body. And in the following scan, the hot spots are in different places than the time before. Now, they are only giving me CT scans looking for the size of the nodes to increase beause all of the docs are baffeled about the PET scans and say they are useless to me. I'm just saying it "is" possible that it's some type of inflammation and not cancer. You were feeling so good, it's just hard to believe. I know autoimmune conditions like mine can cause false positives in PET scans, so could it be possible that your immune system is hyper active because of the stem cell transplant? Just hoping for a miracle for you. I have truly enjoyed your blogs and they have helped me throughout my cancer ordeal. I still have my port and with your and Ethan's latest news, I'm thinking about keeping it for a little longer. This is such a scary thing to go through, but please know you are not alone. There are probably a lot of people like me who are sharing your journey but who have never posted. I live in Atlanta, Georgia and my name is Tammy. I wish you lots of luck, Karin, and I am definitely sending good thoughts your way.
I am so sorry, and am hoping for the best for you and your wonderful family.
ReplyDeleteMan that's not what I was hoping to hear...and I am absolutely keeping good thoughts for you...LOTS of good thoughts!!
ReplyDeletepraying for you as you walk this incredibly difficult road. "let every breath you breathe, be built on sacred things' - hey rosetta.
ReplyDeleteI'm so sorry, Karin. You and your family remain in my thoughts and prayers.
ReplyDeleteWhatever is going on in your body, I know that you will face it with strength and ferocity. Keeping a good thought in Houston.
ReplyDelete*good thoughts* I'm so sorry to hear this, but of course I'm sending out good thoughts.
ReplyDeleteNothing but good thoughts for you, holding them always. HUGS
ReplyDeleteGood, healing thoughts to you, dear girl. May you stay on the road of health crossing whatever hurdles come your way.
ReplyDeleteWeren't there some spots after your last PET scan too? Maybe they are nothing? Keep positive even though it is so damned hard to. Or maybe some of last week's flu/virus is still lingering inside of you? Good thoughts coming your way and keep us all posted.
ReplyDeletekarin
Hi Karin,
ReplyDeleteGreetings from Toronto!
I've been reading your blog for a while now. Stumbled across it when my friend got diagnosed with Cancer.
I've never commented before but I just wanted to say that you will beat this. I know it!! I have a feeling in my gut that you will be live a long long life...
My thoughts are with you and if I could I would give you a physical hug, but instead sending lots of virtual ones! XXX
Sending MANY positive thoughts and good wishes for all of this to settle into something manageable! You have an army of support behind you. Take care and know that so many care and are with you in positive spirit!!!!!!!
ReplyDeleteHi Karin. I have been reading your blog since you and I were both diagnosed with Hodgkin's in 2009. I also have lupus and sjogren's (the autoimmune disease that Venus Williams has). Ever since I completed 6 months of ABVD in January 2010, my PET scans light up like a Christmas tree in different places all over my body. And in the following scan, the hot spots are in different places than the time before. Now, they are only giving me CT scans looking for the size of the nodes to increase beause all of the docs are baffeled about the PET scans and say they are useless to me. I'm just saying it "is" possible that it's some type of inflammation and not cancer. You were feeling so good, it's just hard to believe. I know autoimmune conditions like mine can cause false positives in PET scans, so could it be possible that your immune system is hyper active because of the stem cell transplant? Just hoping for a miracle for you. I have truly enjoyed your blogs and they have helped me throughout my cancer ordeal. I still have my port and with your and Ethan's latest news, I'm thinking about keeping it for a little longer. This is such a scary thing to go through, but please know you are not alone. There are probably a lot of people like me who are sharing your journey but who have never posted. I live in Atlanta, Georgia and my name is Tammy. I wish you lots of luck, Karin, and I am definitely sending good thoughts your way.
ReplyDeleteI know times are tough right now, but you know you're tougher. If and when you're ready to talk or game plan, I'm here.
ReplyDeleteI'll be shooting you an email soon. Sending love and tons of strength. Please give my love to Craig and Sammy too.
Love and Light my love,
B.