Contrary to how long it's been since I've updated, I am still blogging. Life has become very busy – a good busy – and kept me away from it, but I miss it and look forward to coming back. But full-out blogging will have to wait another week as tomorrow I fly to the Outer Banks in North Carolina for five days at Surf Camp with an incredible organization that offers adventure camps for young adult cancer survivors: First Descents.
In ultra summary fashion: I started SGN-35 on May 18 after my PET Scan revealed some new areas of involvement and some reduced areas (not yet clear enough to go untreated). Since then I've had two doctor-visit-free weeks of bliss. This week will be my last week of freedom before my next infusion, which I'll head back to NYC for the day after I return home from my adventures.
Except for some fatigue and fogginess a couple of days after the infusion, I've had virtually no side effects. I've been feeling better than I've felt in a very long time. When I say life has been busy, it's been busy with barbecues, kayaking, gardening, a Dave Matthews Band concert, stand up paddle boarding on the river, birthday parties, working out with LIVESTRONG at the YMCA, and even some small and greatly satisfying reporting and writing projects for work. I'll take that over hospital visits and endless bloodwork appointments any day. I am relishing in this freedom and newly recaptured strength.
You have the most amazing spirit, I hope you have a wonderful time at surf camp!
ReplyDeleteFrom one Davehead to another I hope you are splish splashing Trippin Billies every day of your life. No more Grey Street but living, breathing, dancing evry 2 step of the way! Keep it up girl. On the way back from the OBX if you wanna catch dMb a second time he is in Virginia Beach June 17th! ;) Keep dancing!
ReplyDeleteAmazing I was supposed to be on that trip. Dratz, next year post the Auto. Fantastic to hear you are doing so well.
ReplyDeleteHope you are having as much fun as the Muppets in "The Muppets take Manhattan"!!!!! Remember that movie when we were kids????? Enjoy the city and all of it's glory.... and FEEL GOOD!
ReplyDeleteI hope surf camp is amazing! Sarah B.
ReplyDeleteMissing you and hoping things are well!!!!!!!
ReplyDeleteHope you enjoyed Surf Camp! Sounds like you're having a fun and busy summer.
ReplyDeleteWe celebrate the gift of life and our mission is to try to help others enjoy it as much as possible. Learn more about what we do here: http://bit.ly/LkrEzP
Thinking of you and hoping you are feeling well- stay cool in the Northeast!
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