Showing posts with label coping mechanisms. Show all posts
Showing posts with label coping mechanisms. Show all posts

Friday, April 19, 2013

Visible Ink: Reading of Patient Works 2013


What a gratifying treat to be able to travel to Manhattan not for medical treatment or pow-wows, but instead to see a piece of my writing staged by Broadway actors. For real? For the second year, the judging panel of the Visible Ink Writing Program hosted at Sloan-Kettering chose my submitted piece – “The Guru in the Elevator” – to be one showcased along with 17 others in a night of beautiful performance.

I was thrilled last year and again thrilled this year, especially to be part of the program’s fifth anniversary reading of works. The evening brings together prose, poetry, playwriting, music, dance … followed by a reception of cheeky hors d’oeuvres and sweet delicacies – pretty much all of my favorite things colliding.

My beautiful entourage.
My entourage included Craig, my parents and sister. We had roped-off VIP seating right behind the program’s venerable founder and my extremely kind and wonderful mentor, author Judith Kelman – recently named NYer of the week by NY1. Each of the front rows was marked off for those authors whose work would be showcased that night. It was an honor to be among them.

Working with Judith who pushes me to be a bolder, tighter writer and helps me to brainstorm and focus has been instrumental for me. The program does exactly what it intends to do: empowers and heals. Fox5 NY covered the event and put together a great package showcasing the performance and the program itself. 

All 700 writers that currently participate in the program have been a patient at Sloan-Kettering at one point or another, but not all stories performed that night focused on cancer. There were funny stories and poignant stories, heart-wrenching videos and interpretative weavings of letters of love. It was a wonderful mix, each piece performed wholeheartedly by actors with Broadway credentials kind enough to call these annual readings of patients works to be one of their favorite gigs.

With my mentor, Judith Kelman. 
As evidence, the adorable, animated actress who played the Turkish woman in the kitchen in my piece last year, played me this year and she couldn’t have done better at the part: one that didn’t showcase me in the best light (it’s okay, I crafted it), but was as truthful as can be. It was an honor to have her portray me. Craig’s alter-ego was spot on as well – perfect at the deadpan, unwavering stubbornness that drove me wild on that day that I wrote about.

What made me the happiest were two things: 

To have my family there with me to celebrate a joyous occasion – not huddled around me in mask and gloves waiting to throw the puke bucket toward me.

To have been a part in making people laugh. The actors and the photomontage the director created in the background brought my words to life displaying the right emotions in the right spots. It’s a pretty surreal thing when the words you write get translated into motion. To be honest, I couldn’t even take it all in. I just watched wide-eyed and gape mouthed, fueled by the chuckles from the packed house and filled with humility and pride thinking about how that real, truly shitty day the story was based on could possibly have turned into such a positive, proud, and humbling moment. 

The performance was professionally videotaped, and I'll post a link as soon as it is edited and published. Below are some photos from the performance and the text of "The Guru in the Elevator," which was also published in the fifth anniversary Visible Ink Anthology. You may remember it is a chopped and reworked version of a blog from last summer. 

From the evening's program: 

"The pages are still blank, but there is a miraculous feeling of the words being there, written in invisible ink and clamoring to become visible." 
- Vladimir Nabokov 

With my stage version: Actress Karen Wexler

Craig with the actor who played him, Joe Ricci



That's "us" with our elevator guru. 
                
The Guru in the Elevator
By Karin Diamond

A year ago, I was recovering from an allogeneic stem cell transplant: uncomfortable, irritable, nauseated and in pain.  In other words, a bitch.
This morning, I was particularly tired and weak, not eager to make the trek to the Upper East Side for my daily clinic appointment.
Every couple has sticking points, and that summer, ours was cab-hailing. I begged every night to call ahead to schedule door-to-door service. A certain man was confident that getting a cab would be a breeze.
We awoke and dressed. The tension was seething between us as I ate my toasted waffle with a side of six pills and a spoonful of chalky anti-fungal rinse.
I covered my face and nose with my paper mask, snapped my fingers into my plastic gloves – the picture of fashion. Shuffling on my stick-thin legs, I made my way through the streets with my husband, Craig, eyes peeled for an available cab.
Finding a morning taxi at the hub where the Long Island Railroad, New Jersey Transit, and a slew of subway stops dump means fierce competition. Getting a taxi to stop for someone who looks like she’s carrying a communicable disease makes beating the challenge near impossible.
I was losing patience and my energy was fading. Craig stood on the corner – arm out – as cab after cab whizzed by or other people cut in front of us.
 “We should have called ahead, ” I said. “We’re never going to get a fucking cab here.”
Craig stood, unwavering, as I nagged. He wouldn’t even acknowledge me. My angst and frustration were rising to dangerous levels.
Fifteen minutes passed.  No cab. 
“We should start walking,” I yelled through my mask.
“Be patient,” Craig said.  “We have plenty of time.”
            “Things wouldn’t be this difficult if somebody wasn’t so stubborn!”
I felt a bout of rage coming on.  I was hot, then cold, then nauseous and woozy. I was still getting transfusions, my body wrecked by chemo. I hadn’t taken a normal shit in days.
“I’m going to the Penn Station cab line,” I told Craig.  The Station was a long avenue away, but there were guaranteed cabs there. With that came a guaranteed line of people waiting for those cabs, but I was in no mood to be reasonable.
“That’s ridiculous, Karin.  Just wait.”
My mind was made up.  “I don’t know what you’re doing, but I’m going to get a cab.” I started on my way, thinking this was a good way to get him back, because obviously, the whole New York City cab inefficiency problem was Craig’s fault.
I weaved at a fast clip through the throngs of people pouring out of Penn Station. I had only recently found my legs, but that morning I got my sprint back; spurred by determination to prove a point.
My sunglasses were steaming from the air coming up through my mask.  My hands started to sweat and itch.  I pushed on toward the crowded cab line.  Then my cell phone rang.
What!” I snapped at Craig.
“Where are you?” he said. “I have a cab. You need to get here.”
I could hear the cab driver in the background yelling at Craig.
“Are you coming?” he urged.
            I did what seemed reasonable at the time:  I hung up.
Shuffling up the street, I dodged men selling framed Justin Bieber prints, bootleg movies and peace pipes.
Soon, I started seeing stars and thought I might pass out. My cell phone rang again.
“What?” I said, knowing very well what.
“Where the hell are you? I can’t hold this cab for long,” Craig said.
“I’m coming!” This time I kept our connection open so that he could hear my labored breathing as I lumbered up the block.
The cab driver was screaming: “Get out of my car!  Get out!”
“Please.  She’ll be right here.  Look.  Here she is!”
I collapsed in the back seat and the cab driver sped off, still yelling. 
Neither Craig nor I spoke a word, but a lot was said. I didn’t feel well but admit that I amped up my breathing and moaning for dramatic effect.  Craig’s eyebrows furrowed, his back was rigid as a plank.
The cab driver let us out at the hospital entrance and peeled away in a cloud of city smog.
Craig walked 10 feet ahead of me, as if our anger would implode us if we got too close.  I labored behind, so he had to hold the elevator door.
A man stepped in the elevator car with us for the ride. He was in his mid-fifties, easy, breezy and relaxed. I wanted to hiss at him.
He regarded me in my mask and gloves “I used to be like you,” he said.  “I was a transplant patient fifteen years ago.”
La dee fucking dah, I thought, sneering through my facemask.
Turning to Craig, he said, “You want to smack her yet?”
What? Who is this guy? I was shocked at his remark.
The elevator door opened. The three of us stood in the vestibule.
“A year from now she needs to take you on a vacation for having to put up with all her crap,” the stranger said to Craig.
I stood there like a doofus, knowing that this man remembered the many days on his own drug-fueled, post-transplant, emotional crazy train and could tell I was conducting my own engine that day.
“Do you know what happened today?” Craig asked, breaking into a smile.
“Yes. I do,” the man replied and walked away down the corridor.
That broke the spell. We both let our guards down and looked each other in the eye.  We almost smiled.
One year later, we did take that vacation, one rich in the natural beauty of Acadia National Park – a far cry from the previous summer’s concrete jungle confines. We left our attitudes and stubbornness behind.  No cabs to catch in Maine, only crates of lobster and fresh blueberries to contend with. 










Tuesday, July 27, 2010

Setting Intention

In one of those cosmos aligning, kismet life occurrences, I've found a place that was seemingly built just for me in this time in my life. Just a few weeks ago Enlightened Way Wellness Center opened in the Tariffville Mill, a 3-minute walk from my house. They offer yoga, free meditation classes, massage and body treatments, an herbal tea bar, lifestyle programs and more. But most importantly the couple that runs it are two of the most kind, generous and inspiring people I've ever met. I've had the pleasure of spending time learning from them and plan to do more.

It's been especially great as the center is so new that morning classes are sparsely attended ... I've had a one-on-one yoga class and a private meditation session with both owners. They've offered me suggestions, tactics, visualizations, breathing techniques and a calming focus to lean on as I prepare for the daunting treatment ahead of me and deal with the physical and mental effects of the treatment I am currently in.

After a strengthening yoga class the owner, Mark, pulled me aside and said he had been thinking about me and had some thoughts that he wanted to share if I was open to that. Oh, am I ever. I'm looking for everything I can find to help get my mind, body and spirit in the right place to survive this. We went into the comfy and calming meditation room and discussed:

When we are born we are perfect. We are a perfect manifestation of 100 trillion cells each working in synchronized harmony like a choreographed dance. It's when we hit the world and outside influences come into play that the cells lose their place and get out of step. Enter cancer. Thinking of it this way helps me to realize that it's an organic process. It is nothing of my fault or anyone else's fault that this happened to me. Something just set these certain cells off course and into mutation and now it's just a matter of them finding their way back to that pure and perfect state where everything is once again in harmony.

Rather than visualizing chemo eating away at the cancer cells like a game of Pac Man, I'm working on visualizing my treatment as creating a healing light inside of me that fills me with the power to repair those broken cells. I'm visualizing the cancer cells inside me not as an enemy trying to kill me, but instead as my children that have lost their way. They just need some help in getting back to their pure state. If you have a kid that's seemingly out of control, you still love that child unconditionally, right? By listening to what they're asking for (rest, the right nourishment, peace), with intention, I have the power to get things back in order. By setting the right intentions, I can help those cells rejuvinate and remorph into healthy cells, just like they morphed into unhealthy ones. That may require some tough love, but love nonetheless.

I believe strongly that those who survive and can stay sane during something like this are those that can embrace the negative things that happen to them and learn to work with them, not against them. This fits my personality much better than the idea of killing and anger.

What we give attention to grows. If I focus my attention on being angry or being as "pissed off" as the cancer is, then that anger is only going to grow to other parts of my life. From the beginning I've never been angry or resentful for more than fleeting moments as I know it's energy wasted – and most days I don't exactly have energy to spare. Rather than hating and cursing them, if I look at those cancer cells as part of me and love them then that love will grow. Attention is what I am focused on right now. Intention is what I am setting for my future. A future of health and harmony.

By no means does this mean I'm giving up the battle. I talk often about the Rocky mentality and having that story as my inspiration. What strikes me so much about it is it's about going the distance; getting back up when you don't think you can. It's not necessarily about being stronger or more blood thirsty than the enemy, but instead about knowing how to fight smarter. In fact, Rocky doesn't even win the fight in the original movie, but he does go all 15 rounds with Apollo Creed – a big deal. That does not happen by accident ... it all goes back to his training, to harnessing fear, to digging deep and finding that place, to rolling with the punches.

Mark pointed out that in ancient martial arts when one opponent is being attacked by another, instead of tightening up and puffing out his chest like burly guys in bars after a few beers, he leans back to absorb the hit and lets that force ricochet off him and into space. It's a similar concept to Parkour or Freerunning, the physical discipline of training to overcome any obstacle within one's path by adapting one's movements to the environment. This allows those that practice Parkour to be able to land seemingly inhumane leaps and bounds without shattering every bone in their bodies. In short, I can't control what's happened to me and the physical challenges that it brings, but I can control my attitude toward it and how I absorb it into my life.

For me it's vitally important to be an active participant in my care, complementing the powerful medicines and scienctific advances that I'm subject to. It's easy to sit back and say "everyone is going to get cancer anyway so why should I care how I treat my body?" This is a detrimental way of thinking. Life is about building a foundation so that if and when we do face deep stress, loss, or illness, we've built the foundation we need to be able to handle it, that we've learned not to puff our chests and attack it but to absorb it, listen to what it's trying to tell us and use those answers to carry us forward. If our bodies and minds are not strong during "regular life," what is going to happen when that life is turned upside down? I am forever grateful that I was in the mental and physical place that I was when I was first whopped with this diagnosis and that I've been able to maintain that with each diagnosis since.

Sure there are days when I turn into a crazy person for a little while. No matter how much yoga and visualizations I do there are days when I cry and scream and become resentful and frustrated. But that's an important part of the process too. Without going off balance I wouldn't appreciate the stability. There's no better feeling than getting to that low point, reeling myself out of it, then being able to look back, take a deep breath and learn from it.